Saturday, September 23, 2006

Grumbles

Two days after my last post, I went to the urgent care clinic in Manhattan Beach, and was diagnosed with a bacterial infection and given amoxicillin. I had to cancel my MBA classes for the first time ever when I could barely speak or walk on Tuesday. And I still have most of my symptoms today, Sunday, two days into Week 3 of the cold.

We'll post new hair pictures soon, because there is visible progress--although again, it's 7 weeks after chemo, and I thought I'd have a lot more hair by this time. Eyebrows and eyelashes are coming back well, though they're still stubby. Basically, I am making forward progress, but it is very, very frustrating how slowly that progress occurs--and how many steps backward I have to take on the way. The cold is a prime example. It really sucks to get so sick when I expected to be healthier and healthier.

I've heard many people say that things get harder after treatment ends, before everything gets easier. That is starting to make a lot of sense to me. I am still 2 weeks from the real end of treatment, but I want my life back NOW, and it doesn't work that way. Argh.

3 comments:

Upstater said...

You are so brave but remember the saying that a watched pot never boils. It all takes time...........

Love

Barb

Anonymous said...

hmmm.still an opportunity to learn? "Learn" what, I'm not sure but I'm totally confident that learn it you will! Remember the phone conversation in which you considered the possibility that, rather than complaining or railing against all of those uncomfortable, frightening, painful, terrorizing, and unwanted experiences, you had an opportunity to welcome them and embrace them to you for the meaning they might bring you. Maybe that's still an option? Regardless, let me add my voice to the chorus that wants to yell out, "Enough already! Let her be!" but then, I suspect that's OUR opportunity as well. I keep trying to practice that lesson, but i have to admit a very big part of me yearns to be able to comfort and protect you from all of this. Our arms are around you in love. Dad and Mark

Anonymous said...

URGENT ALERT! ACTION NEEDED!

We have just learned today that Senator Coburn has refused to lift his hold on the Breast Cancer and Environmental Research Act (BCERA)!

As you know, before the August recess, the Breast Cancer and Environmental Research Act (S. 757), in spite of having 66 Senate co-sponsors and 99 Senators agreeing to pass the bill by unanimous consent, was held up by one Senator's objection-Oklahoma Senator Tom Coburn.

More than two weeks ago, NBCC sat down with key hill staff and worked out a good faith response to address concerns Senator Coburn had with the bill. At that point, the response was to be moved to the 'Member level' for concurrence. Today we learn that S. 757 is a 'no go' and Senator Coburn's hold will not be lifted.

You all know that NBCC's grassroots have worked hard for more than six years to educate members and gain support for this bill. As a result, in the 109th Congress, we were successful in garnering the support of an overwhelming majority of both the Senate and House for this important legislation that could lead to discoveries in preventing breast cancer. 66 Senators and 255 Representatives have co-sponsored this bill! The Senate HELP Committee voted unanimously for S. 757.

It is absolutely unacceptable that S. 757 will not even be brought to the floor for a vote! We need you more than ever to call the Senate leadership offices below and let our voices be heard. Flood their offices with calls sending the message:

"Bring the Breast Cancer and Environmental Research Act to the floor for a vote. The women and men of America want this bill passed. Women's lives depend on it and we are watching."

Calls should go to Majority Leader Bill Frist at 202-224-3135 and Majority Whip Mitch McConnell at 202-224-2708.

It is urgently important for you to make these calls both today and tomorrow!

Warm Regards,
Fran Visco
President, National Breast Cancer Coalition